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What is Central Pain Syndrome?

Central pain syndrome (or CPS for short) is a neurological condition caused by damage to or dysfunction of the central nervous system (CNS), which includes the brain, brainstem, and spinal cord. This syndrome can be caused by stroke, multiple sclerosis, tumors, epilepsy, brain or spinal cord trauma, or Parkinson's disease.

The character of the pain associated with this syndrome differs widely among individuals partly because of the variety of potential causes. Central pain syndrome may affect a large portion of the body or may be more restricted to specific areas, such as hands or feet.

The extent of pain is usually related to the cause of the CNS injury or damage. Pain is typically constant, may be moderate to severe in intensity, and is often made worse by touch, movement, emotions, and temperature changes, usually cold temperatures. Individuals experience one or more types of pain sensations, the most prominent being burning.

Mingled with the burning may be sensations of "pins and needles;" pressing, lacerating, or aching pain; and brief, intolerable bursts of sharp pain similar to the pain caused by a dental probe on an exposed nerve. Individuals may have numbness in the areas affected by the pain. The burning and loss of touch sensations are usually most severe on the distant parts of the body, such as the feet or hands. Central pain syndrome often begins shortly after the causative injury or damage, but may be delayed by months or even years, especially if it is related to post-stroke pain.

Central pain syndrome is sometimes referred to as: Central Post-Stroke Syndrome, Dejerine-Roussy Syndrome, Central Neuropathy, Posterior Thalamic Syndrome, Retrolenticular Syndrome, Thalamic Hyperesthetic Anesthesia, Thalamic Pain Syndrome.

Definition provided by NINDS Central Pain Syndrome Information Page.

What is the CPSA?

The Central Pain Syndrome Alliance is a support group for people suffering from CPS. Our website is currently under construction, but our message board is still active. You can also sign up for our newsletter by filling out the form to the right. You'll be kept up-to-date about the latest CPSA news, what's going on in the forums, the latest research into CPS and you'll be notified when the new site is ready!

How can I get in touch?

While the site is under construction, you may contact the CPSA through Facebook or Twitter. Or, if you'd prefer, you can contact us through email.